[Hybo]

How many docotors did you have to see before they offered it to you?

 

[annie7]

i told my gastro doc that i wanted the bag and he referred me to a colorectal surgeon and the CR surgeon agreed to do it.

 

[flossy]

I'm taking 2 scoops of miralax 3 250 docusate sodium it had to be Bristol 6 or 7 for me to feel anything. If it's harder I can't feel it. And I have a fissure so I have to stop forcing it

I've used both of those in the past.

I recommend you try this (click on below link to read):

https://www.ibsgroup.org/forums/topic/239065-finally-a-product-i-can-recommend/

Keep us posted if you try it. You should. Good luck!

 

[Hybo]

I'm still trying to figure out how you get a urge with rectal hyposenitivity.

 

[flossy]

Okay, let me back up here: Do you now or have you ever had chronic constipation, or just rectal hyposensitivity?

 

[Hybo]

Just rectal hyposenitivity. I started with a fissure but it wasn't healing. They did a defegraphy on me thinking I wasn't shitting right but found no issues. Then they did a balloon test. I could not feel it they do me with rectal hyposenitivity. I only know when I have to poop when i have really loose stool.

 

[Hybo]

Sorry I hit enter.to early. My whole life tho i was always constripated. But haven't been since I started taking mirlax and what not. Soft stool but still was straining to poop. Because I don't get the bm urge

 

[flossy]

Well, Annie & both recommended the same thing, but it's up to you whether you try it or not.

I'm sorry but I can't help you much with rectal hyposenitivity, as I am unfamiliar with it.

I did Google it and found this (from this website):

https://www.ibsgroup.org/forums/topic/184754-has-anyone-ever-been-cured-of-rectal-hyposensitivity/

Good luck and keep us posted!

 

[vitaminjlr]

I also have RH and Im waiting to do biofeedback. Im hoping they focus on re-establishing the sensory thresholds through balloon training as I believe this is much more difficult to rectify than PFD! I also have PFD but I think I have somewhat fixed this myself by being aware and trying to relax the pelvic floor. I think however its impossible for your anal sphincter muscles to relax fully unless you get a sufficiently strong urge - which for those of us with RH never really happens!
For me, I cant get the urge if my stool is too loose - so I try to cut back on Miralax, but then it just stops moving through the colon entirely. Such a difficult balancing act.
I have read that Sacral Nerve Stimulation can possibly help with RH.
But yes I have many times contemplated that having a bag would be much easier than managing this!

 

[annie7]

good luck with biofeedback. hope it helps you!

 

[vitaminjlr]

Thanks annie7! Im also about to start taking Prucalopride tomorrow morning for the first time. Very nervous. I hope this and biofeedback will give me some relief.

 

[vitaminjlr]

https://www.ncbi.nlm.nih.gov/m/pubmed/22418005/

Here is the article about RH and sacral nerve stimulation in case anyone is interested

 

[annie7]

thanks for posting this! sounds like it's worth a try.

 

[Hybo]

my issue is that I have anal fissures that are hurting like hell and wont heal because I have to keep stoop and plop or diarrhea. so I fear going to the bathroom at all right now because of the pain. They tried botox on me it didnt work, they wont do surgery because it wont work because of whats going on. so Im wondering if they would allow me to get a colostomy for that. I havent talked to them about it yet

 

[annie7]

i don't know--you'll have to ask your doc about that. surgery of any kind is a pretty serious thing and a colostomy is a surgery of last resort. it has to be medically necessary or insurance won't pay for it. . i have heard of some people getting a temporary colostomy until their fissure heals. then the colostomy is reversed. like i said, ask your doc.

 

[Hybo]

Annie you are a inspiration btw thanks for your input

 

[annie7]

thanks!

 

[Hybo]

Does this effect any of you when it comes to working?

 

[annie7]

i'm retired now but back when i was working (and before i had my bag) well--it was hard. i hated going into work feeling all backed up and C. and i had to get up about three hours before i had to leave for work in order to give my laxatives plenty of time to finish working. sometimes the laxatives worked well and then i had a good day but other times they didn't work so well.

it was a relief when i was finally able to retire.

 

[Hybo]

Might I ask what you would take. I'm assuming you are in my boat where it has to be plop or diarrhea to feel the urge?